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NATIONAL Baby Loss
PO Box 1168, Southampton SO15 8XZ
E-mail: support@babyloss.com
www.babyloss.com The Babyloss website provides information and support online for anyone affected by the death of a baby during pregnancy, at birth, or shortly afterwards. The Child Bereavement Trust
Aston House, West Wycombe HP14 3AG
Tel: 0845 357 1000/01494 446648
E-mail: enquiries@childbereavement.org.uk
www.childbereavement.org.uk The Child Bereavement Trust is a national UK charity, founded in 1994. By listening to bereaved children and parents, The Child Bereavement Trust leads the way in improving the care offered by professionals to grieving families in the immediate crisis and in the many months following the death of someone important in their lives. The Child Bereavement Trust has produced books, videos, CD-Roms and developed a wide range of information leaflets and resources that are helpful to families and professionals. These are available from: www.childbereavement.org.uk/resources. Childhood Bereavement Network
8 Wakley Street, London EC1V 7QE
Tel: 020 7843 6309; Fax: 020 7843 6053
Email: cbn@ncb.org.uk
www.childhoodbereavementnetwork.org.uk The Childhood Bereavement Network seeks to ensure that all children and young people in the UK, together with their families and other caregivers, including professional carers, can easily access a choice of high-quality local and national information, guidance and support to enable them to manage the impact of death on their lives. Liverpool: Child Death Helpline
The Alder Centre, Alder Hey Children's NHS Trust, Eaton Road Liverpool L12 2AP
Helpline: 0800 282 986
Tel: 0151 252 5391; Fax: 0151 252 5513
Email : contact@childdeathhelpline.org
www.childdeathhelpline.org.uk London: Child Death Helpline
York House, 37 Queen Square, London WC1N 3BH
Helpline: 0800 282 986
Tel: 020 7813 8416 (Admin); Fax: 020 7813 8516
Email : contact@childdeathhelpline.org
www.childdeathhelpline.org.uk Child Death Helpline is a listening service that offers emotional support to all those affected by the death of a child including siblings. It is not a counselling service, but provides an opportunity to talk in confidence with parent volunteers who have also experienced the death of a child. Compassionate Friends
53 North Street, Bristol BS3 1EN
Helpline: 0845 123 2304; Office: 0845 120 3785
Email: helpline@tcf.org.uk
www.tcf.org.uk An organisation of bereaved parents and their families offering understanding, support and encouragement to others after the death of a child or children. They also offer support, advice and information to other relatives, friends and professionals who are helping the family. Foundation for the Study of Infant Deaths
11 Belgrave Road, London SW1V 1RB
Helpline: 020 7233 2090; Tel: 020 7802 3200
E-mail: office@fsid.org.uk
www.sids.org.uk/fsid The Foundation for the Study of Infant Deaths is the UK's leading cot death charity working to prevent unexpected infant deaths and promote baby health. It operates throughout England, Wales and Northern Ireland to fund research into the causes of sudden infant death, support families whose babies have died suddenly and unexpectedly, and to promote information about cot death and safe infant care to the public and health professionals. The Miscarriage Association
c/o Clayton Hospital, Northgate, Wakefield WF1 3JS
Helpline: 01924 200799
Tel: 01924 200795; Fax: 01924 298834
E-mail: info@miscarriageassociation.org.uk
www.miscarriageassociation.org.uk The Miscarriage Association have: a UK-wide network of over 150 volunteer telephone contacts who have been through pregnancy loss themselves and can offer support, understanding and a listening ear. Contact to get the telephone number of your nearest support volunteer; 50 support groups across the UK, where people can meet and share their experiences and feelings in a safe and supportive environment. Contact to get the telephone number of your nearest support group; leaflets, factsheets and audiotapes which answer the most commonly asked questions about pregnancy loss, and which can also help you to help someone you know who has been through this experience. Rainbow Trust
6 Cleeve Court, Cleeve Road, Leatherhead KT22 7UD
Tel: 01372 363438; Fax: 01372 363101
www.rainbowtrust.org.uk Rainbow Trust was founded to provide respite and support at home to children with a life threatening or terminal illness and their families. Immediate help is on hand through the Rainbow Trust Family Support Service and at the Charity's two respite centres. All care is free. Children with life threatening or terminal conditions very often prefer to be cared for in their own homes but caring for a sick child can be stressful and demanding. Rainbow Trust's family support worker teams offer practical and emotional help in the family's own home. Rainbow Trust family support workers help with the normal activities of daily life by providing a listening ear to anxious parents, sick children and worried siblings. They provide practical help with running the home, transport and support with endless hospital visits. Rainbow Trust understands that when a child is very ill all members of the family are affected, especially brothers and sisters. Stillbirth and Neonatal Death Society (SANDS)
28 Portland Place, London W1B 1LY
Helpline: 020 7436 5881
Tel: 020 7436 7940
E-mail: helpline@uk-sands.org
www.uk-sands.org The Helpline is for anyone who has been affected by the death of a baby and wants to talk to someone about their experience. The Helpline team are there to listen and give support. They can advise about finding local help, whether from a SANDS group or other counselling services, and have information about other relevant support organisations. Please see also Cruse Bereavement Care Quick Link. SCOTLAND Scottish Cot Death Trust
Royal Hospital for Sick Children, Yorkhill, Glasgow G3 8SJ
Tel: 0141 357 3946; Fax: 0141 334 1376
Email: contact@sidscotland.org.uk
www.sidscotland.org.uk The Trust offers support to all families who have suffered the sudden unexpected death of their baby or young child and to the professionals dealing with such a tragedy. A range of leaflets have been produced for families and a bereavement support worker is available to visit the family in their home or provide telephone support. In addition, parents can be put in contact with a befriender - a parent who has suffered a Cot Death in the past and who is now willing to offer support and hope to the newly bereaved family. If and when the parents decide to have another baby, the Trust ensures that a breathing monitor is available for the baby. While this is not a guarantee that their new baby will not die it can provide much needed reassurance for parents who can go to sleep, knowing that they will be alerted if their baby stops breathing.
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