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NATIONAL The Stroke Association
Stroke House, 240 City Road, London EC1V 2PR
Helpline: 0845 3033 100
Tel: 020 7566 0300; Fax: 020 7490 2686
Textphone: 020 7251 9096
www.stroke.org.uk National Helpline provides advice and information on stroke illness. The Stroke Association offer welfare grants for which applications must be made by a social worker or health professional. Encourages the formation of stroke clubs (currently around 500). There are Dysphasia and Family Support Organisers and Regional Centres in many areas. Free quarterly magazine 'Stroke News', and a number of leaflets and publications covering many aspects of stroke. ARCOS
Whitbourne Lodge, 137 Church St, Malvern WR14 2AN
Helpline: 0845 122 8697Tel: 01684 576795
Email: arcos@arcos.org.uk
www.arcos.org.uk Information, advice, practical help and other services for children and adults who have communication and eating (swallowing) difficulties because of accident or illness. Brain and Spine Foundation
7 Winchester House, Cranmer Road, Kennington Park, London SW9 6EJ
Tel: 020 7793 5900; Fax: 020 7793 5939
Email: info@brainandspine.org.uk
www.brainandspine.org.uk Telephone information and support for people affected by neurological disorders, their relatives and health professionals. Deal with all brain, spine and related conditions including head injury, epilepsy, stroke, brain tumours, brain haemorrhages and spinal disorders. Colostomy Association
2 London Court, East Street, Reading RG1 4QL
Helpline: 0800 328 4257; Tel: 0118 939 1537
Email: cass@colostomyassociation.org.uk
www.colostomyassociation.org.uk Helpline, advice, information and support for people who have had or are about to have a colostomy. Hospital visits and pre/post operation home visits. Provide a range of leaflets on request. Child Brain Injury Trust
Unit 1, The Great Barn, Baynards Green Farm, Nr Bicester OX27 7SG
Helpline: 0845 601 4939
Email Helpline: helpline@cbituk.org
Tel: 01869 341075
Email: info@cbituk.org
www.cbituk.org Services for families of children with traumatic or other acquired brain injury. Telephone helpline and email enquiry and information service. Network of family support groups. Small grant scheme for children with ABI and their siblings. Activity holidays for siblings. Headway
7 King Edward Court, King Edward Street, Nottingham NG1 1EW
Helpline: 0808 800 2244
Tel: 0115 924 0800; Fax: 0115 958 4446
E-mail: helpline@headway.org.uk
www.headway.org.uk A registered charity, Headway was established in response to the special needs of people with brain injuries, and their families. It has over 60 Headway House day care centres and over 100 local groups across the UK. SCOTLAND Chest Heart and Stroke Scotland (CHSS)
65 North Castle Street, Edinburgh EH2 3LT
Advice Line: 0845 077 6000
Tel: 0131 225 6963; Fax: 0131 220 6313
Email: admin@chss.org.uk
www.chss.org.uk Chest Heart and Stroke Scotland aims to improve the quality of life for people in Scotland affected by chest, heart and stroke illness, through medical research, advice and information, and support in the community. Their services include: - a nurse-led advice line; patient booklets and videos; stroke nurses supporting people returning home from hospital after a stroke, including specialist services for young stroke survivors; the volunteer stroke service for people with communication problems; campaigning and awareness raising; research fellowships. CLAN: Cancer Link Aberdeen & North
CLAN House, Caroline Place, Aberdeen AB25 2TH
Helpline: 0800 783 7922
Tel: 01224 647000; Fax: 01224 640802
Email: enquiries@clanhouse.org
www.clanhouse.org CLAN is an independent charity for anyone affected by any type of cancer at any time from diagnosis onwards. Whether affected personally, as a carer, family member or close friend, our services are available to you. Although the Support Centre is at CLAN House, Aberdeen, we cover the whole of Grampian, Orkney and Shetland. Some of our services are available to people living outside these areas, specifically CLAN Haven and the CLAN Holiday Home. Pain Concern
PO Box 13256, Haddington EH41 4YD
Helpline: 0844 499 4676;
Tel: 01620 822572; Fax: 01620 829138
Email: info@painconcern.org.uk
www.painconcern.org.uk Scottish charity providing information and support for pain sufferers and their relatives/carers. Spinal Injuries Scotland
Festival Business Centre, 150 Brand St, Govan, Glasgow G51 1DH
Freephone Line: 0800 0132 305
Tel: 0141 427 7686; Fax: 0141 427 9528
Email: info@sisonline.org
www.sisonline.org Helpline for people with spinal injuries, their families, friends and carers. Support, listening and advice. Issues dealt with include welfare benefits, legal rights, wheelchairs, mobility and holidays. Also offer referrals to other disability organisations. Speakeasy Aphasia Self Help Group
c/o Speech and Language Therapy, CBIR, Royal Victoria Hospital, Jedburgh Road, Dundee DD2 1SP
Tel: 01382 423149
Email: laorag.hunter@nhs.net AIMS: People with aphasia (language impairment acquired by stroke or head injury) supporting each other in finding ways of living well with long term communication difficulties. Working with the community and public services to reduce the barriers facing people with aphasia in their everyday lives. Volunteer Stroke Service, Dundee and South Angus
11 Coxs Gardens, Dundee DD3 9GZ
Tel: 01241 856071 AIMS: Offers practical help to patients with speech and communication problems, following a stroke. Aims to restore confidence, improve quality of life and rebuild morale. There is a home visiting service and weekly stroke group meeting in Dundee. Weekly meetings provide structured programme of activities, as varied as computing, art, bowling and puzzles. Pain Association Scotland
Cramond House, Cramond Glebe Road, Edinburgh EH4 6NS
Helpline: 0800 783 6059
Tel: 0131 312 7955; Fax: 0131 312 6007
Email: info@painassociation.com
www.painassociation.com Voluntary organisation providing support and training for people with chronically painful conditions, including those occuring as a result of accidents. The main focus is to help people to cope with the effects of chronic pain and find ways of dealing with the limitations that this imposes on their lives. Regular local support meetings, training days and dedicated pain management courses are also offered to members. WALES Epilepsy Wales
PO Box 4168, Cardiff CF14 0WZ
Helpline: 0845 741 3774
Tel/Fax: 029 2075 5515
Email: helpline@epilepsy-wales.co.uk
www.epilepsy-wales.co.uk Helpline and a range of services for people with epilepsy, their families, carer, health/social care professionals. Advice and information. Fieldworkers throughout Wales provide advice and support. Run training sessions for teachers, parents, carers and care workers. NORTHERN IRELAND Child Brain Injury Trust
Unit 7, McKibbin House, Eastbank Road, Carryduff BT8 8BD
Helpline: 0845 601 4939
Tel: 02890 817 145
www.cbituk.org Stroke Association Northern Ireland
Graham House, Knockbracken Healthcare Park, Saintfield Road, Belfast BT8 8BH
Tel: 028 9050 8020; Fax: 028 9050 8025
Email: northernireland@stroke.org.uk
www.strokeni.org.uk The Stroke Association Northern Ireland (formally Speechmatters) is a community based charity, providing vital, professionally led services such as speech and language therapy, family and carer support, training, information and advice to stroke survivors and people living with aphasia, their carers and families right across Northern Ireland. |
